"Above & Beyond" Member (300+ posts) Joined: Feb 2004 Posts: 372 | Danielle, They biopsied some "suspicious"spots around Dan's graft after his partial glossectomy and it came back PVL, the rare form. I have heard that some people have just the leukoplakia like your mom for years w/o it turning into cancer...they say Dan has the rare PVL kind and that the patches that come are definitely precancer and definitely will turn into cancer if not removed asap. We were trying to find out anything else we could, but got the sidetract of neck tumor cancer before we had much chance to get more info. Thanks, Deb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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