My mom hadn't been warned about mucositis either, but about halfway through treatment she had a horrible case. Her radiation oncologist refused to treat her when he saw her, was afraid he was killing the flap from her surgery, so we rushed her to her surgeons who said it was just mucositis causing it to look so bad. At this point she had not been taking any pain meds so they put her on a fentanyl patch immediately. It was so painful she couldn't even drink water without it feeling like acid, so the painkillers were greatly welcomed. I wish we had known what was coming though, we had no idea and it was a real scare at that time. Thankfully it didn't take long for it to clear up.

It sounds like you've gotten a lot of great tips from others that have been through it. Hang in there, you have a great attitude and it sounds like you have done really well so far.