OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | A quick update. The survey is still going on. PLEASE take a couple minutes to complete the survey. Share it with your caregiver or if you are the caregiver, have the patient also complete it. This survey has the potential to help change how oral cancer patients are treated and what additional services will automatically be offered to them.
Right now about 100 oral cancer patients and their caregivers have taken the survey. Moffitt is looking to have a minimum of 150 responses from patients and also 150 from caregivers. Please pass it along to any other oral cancer patient or caregiver you know.
Thanks!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |