"OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Of course your first action must be as David suggests but I also want to suggest a another possibility and solution.
It sounds an awful lot like your throat lost or is losing its function and muscle tone so that choking becomes more regular. That you have suffered several bouts of aspiration pneumonia suggests that your swallowing mechanism is not quite working right and food and liquid is going into your lungs.
The pain in your throat which gets worse through the day might also be a sign of loss of tone from lack of use and be related in the same way that if you ran a marathon tomorrow without having practised first you would feel as if your legs were going to fall off.
Do you have any contact with a speech pathologist/therapist who would first of all check your swallowing ability with a modified barium swallow and also give you some exercises to maintain the swallowing ability you DO have. I would hope that if your doctors are talking about a feeding tube they have done the barium swallow?
A feeding tube might not necessarily mean that you have to stop eating, although this might indeed be the advice once you have been examined properly. You could potentially still eat the things that don't give you such a hard time or certain foods that a speech therapist might recommend without the added pressure of maintaining your nutrition.
I guess my advice is make sure a speech therapist is involved in your decsions.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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