Joannc,

I'm happy to see that all your tests came back negative. You and I were going through our biopsy wait periods together. A very stressful time...

I'm with Gary. You had all the the usual diagnostic tests for oral cancer and each came back negative. You should feel good about the diagnosis even with the pain. I know, you still have pain. In the back of your head there are all those stories of missed diagnosis... you have an unanswered problem... you really do feel the need to get to the bottom of why it hurts.

After my biopsy finally came back negative I was unsure about my diagnosis. I kept thinking something was missing. 2 biopsies and 19 tissue samples. You think that would be enough... So, I asked my ENT about an MRI and a CT scan. He said exactly what Gary said. MRI for soft tissue and CT for bone. My ENT convinced me that there was no reason to do either of these test at this time. My only solice is that I see my ENT regularly and will continue to do so. If something arises I feel confident that we (me and my ENT) will get to the bottom of it.

You either have to trust your doctor or go to another one. 4 years ago I was diagnosed with SSC of the lower lip. The first ENT I worked with was a real jerk. I consulted with my primary care physician and was quickly referred to a number of other doctors (I had a number of second opinions). I never regretted it.

As you read the OCF lists you will find similiar stories. My current ENT listens to my complaints and works with me, spending as much time as needed until I feel comfortable. In my case, comfort gives way to trust.

Your in my prayers.

SteveS