Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi Kelly, The number and frequency of strange pains, some of which are quite noticeable) seemed to become higher at about 1 year out of treatment for me as well. The reason I came up with is that the nerves have finally reconnected and there is finally a sense at all. I also believe that the long term effects of radiation include dull aches and sometimes sharp pains together with bouts of severe stiffness almost like a total neck charlie horse. The radiation people don't seem to mention all this stuff at first.
Five days ago we got a big snow storm (30 inches over several days) and I went outside with my two older sons too "play" in the snow. We ended up with "king on the snow pile" (I won :p ) but the payback was a very painful neck with stiffness that has lasted till today. I have been very active for quite a while since treatments but for some reason the combination of wrestling and cold set my neck off. Oh well, one thing you can say about pain is: If you feel it, you're still alive!
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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