Ilyse - wow, you have really been through it. I admire your courage and send you all good vibes for continued improvement. Interesting about your ENTs telling you to go for different opinions. Dunno of course where you are in CA and I'm sure there are great docs everywhere. I had a wonderful team here in LA should you be nearby and need a recommendation.

Thinking of you.

David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18