Hi there... And welcome! We've had similar cancers - I had one lymph node involved though (40 removed), and despite my dr. Being certain he'd got it all, and that in his very educated opinion I was cured, I still did radiation and chemo. That's a good bullet for your to have dodged! Do keep an eye on your neck and be diligent with getting to know your mouth. That way you can spot any changes immediately. smile

l know its a lot - but you'll get through it.. I'm not sure how much sensation etc, will return for your neck and face... Some for sure but it will likely never again be 100% maybe 90 - smile mine is still stiff and numb one year out - I go to acupuncture weekly and this has helped a lot! Mind you I had radiation to the tissue so this definitely makes a different. As time passes you will adjust... It's scary crap but there are a quite a few of us here! smile and a few your age - I'm a few years older, and lost a little less of my tongue... But it's still very similar. Take care and we're here to listen and help!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan