OP "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Welllll.. For those of you who've undergone a tongue surgery and neck dissection I was wondering...
I know we all have our good days and bad days and somedays my tongue feels more swollen than others. I have always wondered at the differences from day to day... since I tend to like to figure out the whys of this stuff. This is of course all in my quest to return to optimum post treatment status. ;o)
I do find that the acupuncture really helps loosen my neck and scar tissue and returning blood flow to the area has really softened the area up, though there are days that my neck feels tighter than others...
it's come to my attention that this symptomology is closely related to swelling in my face, jaw and neck... ultimately the more swollen all of them feel the tighter my neck... it makes sense since that tissue is full of blood and therefore less slack.
I do notice that lymphatic massage helps this a lot, however I have also noticed it has a lot to do with how I sleep as bizarre as that may sound. I was never a back sleeper before all of this happened - through treatment I would sleep on my side with a facecloth on my pillow to catch the drool... but since I have a bit of post nasal drip courtesy of rads, I got into the habit of sleeping on my back with my head in a little valley between two pillows.. weird I know but it allows my head to drift off to the left a bit so I don't feel the post nasal drip while trying to fall asleep. However, I've noticed now when I do this, I wake up a little more swollen in the morning... I also recently discovered - thankfully - sleeping on my side..either side... allows me to wake up feeling almost normal...
Just thought I'd share.
Has anyone else noticed this?
have a good one.
Last edited by Cheryld; 04-05-2012 01:02 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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