On one of my busiest days I find myself drawn to this website and even posting . . .
My taste experience is that I kept it mostly through treatment until the end, then afterwards it was bad, or hit and miss for a while, not sure how long.

Then sometimes I was better, sometimes it seemed like I went backwards, but I think it was just that my taste was changing slightly (an adjustment).

Now a year out it is pretty good, not perfect, but my saliva is a lot better, and that seems to help my taste buds. I don't doubt that for some people it is two years. That is maybe not good news to you Ben, but it is great news if you are 1 year out and would like it to get better.

Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021