Yes, CTs show tumors. So do MRIs. PETs detect areas of high metabolism, something cancers have. PETs are often done in combination with CTs. But all that is neither here nor there and does not address what seems to be troubling you -- if there is some base that hasn't been covered or some information that hasn't been given to you.

I strongly encourage you to pin them down until they answer all your questions to the point that you are satisfied. Approach them with respect but from a position of strength. Every code of practice, every guideline and ethical standard specifically calls for doctors to do this, especially for patients with critical and complex needs. I would hazard a guess that people have put things in your hands, including a Patient Bill of Rights or something similar with a different title. Have a look.

Given confidentiality issues, is your husband willing to press them or be present and let you do the questioning? Does he WANT to know everything there is to know? My husband doesn't but is fine about me knowing and telling him what he needs to know when he needs to know it.

Don't be brushed off, rushed along or made to feel like you are being a bother. Seek second opinions, especially if something doesn't set right with you.

And keep your eye on them (the medical team). I am a nurse and understand the healthcare environment. No matter how good the staff are, stuff can happen. I'm not meaning to cast things as "Us" and "Them". I mean the opposite. We are all working toward the same goal. The more people around who are paying attention, the better. I think it makes our loved ones feel a little more at ease, too.

Here's my experience..........Rick was to have weekly chemo and 7 wks of rads. Because it all happened around the holidays, the chemo clicked along once a week but the rads stretched into the 8th week because of days missed for public holidays. He had the first two chemos as an inpatient. For whatever reason, I was the only one counting chemos accurately. He was put down for an 8th cycle before I questioned it. And it was a mistake, he didn't need to have it. They had forgotten to write down one of the inpatient sessions.

Best of luck in the coming days and weeks.


CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.