I am sorry to hear of the many problems you are having. My surgeon who done my right radical neck dissection is reported to be the best hands here in Buffalo NY. His name is Dr Kuen Y Lee. He is with Buffalo Otolaryngology Group. 716-883-6800.
I hope this is of some assitance to you. Keep positve although I know how difficult it can be.

5-02 SCC T1N1M0 Stage 3 Right Tonsil
6-02 Right Radical Neck Disection
9-03 Recurrent SCC Dx Stage 4 unknown prim
12-03 7 Chemo
12-03 36 Rad
5-04 Left Upper Lung Wedge Resection neg
7-04 Right Parotidectomy
9-04 Began IMRT
10-04 Ended IMRT