My husband had a recurrence 6 weeks out of treatment. We got opinions after that from his original doctor at Mayo, Emory in Atlanta, and then Johns Hopkins in Baltimore. I think the more educated we can get, the better. They all agree that there are many more tools in the toolbox. He is in a clinical trial right now and feeling well. We were told that as long as he remains strong and can tolerate treatment, he is the perfect candidate for living many more years. They don't say how long, because they just really don't know.

Anyhow, don't give up. There are lots of options we were told!

Robin


Robin, caregiver to husband, Andy (57 yo non-smoker)
1/2011 dx scc stage 4 -primary- tonsil/bot
2/2011 surgery/rnd/ imrt rad/ 3 cycles cisplatin
6/2011 recurrence - mets to bone
7/2011 tx carbo/erbitux/5 FU- pet showed disease progression
11/2011- present clinical trial