"OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | WOW, we reported this to the RO 3 months out from finish of treatment and he said he had never heard of it!
At the time I thought it was either code for "don't bother me with the side effects - thank your lucky stars the treatment worked" or that it was a cisplatin side effect which the RO knows nothing about.
Anyone have any idea how long it takes to ease off (if it ever does)?
Alex describes it as a shock that comes out the bottom of his feet when he jolts his body (eg steps off a kerb). He also reports it is not as bad as this time last year but he has numbness in the balls of his feet.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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