"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there Christine is right - first off if you feel you're not being listened to - go see someone else. And don't wait. Try to get in as early as possible, when you see the dr for follow up, do tell him your very concerned and why - perhaps he will send you for a ct, MRI, pet, - a biopsy is generally definitive, the only Time they miss something is if they remove tissue from the wrong area in your case since things don't appear to be visible so finding somewhere to biopsy is a little harder. You said they scoped you, usually if here's a tumor impeding swallowing they would see it. . Scans are actually accurate in pointing out issues - though they also respond to inflammation, and infection, but they will point out problem areas and maybe that would be a good starting point as what is going on with you does sound unusual. Do advocate fo yourself with your dr. But remember as Christine said - demands may not be met with a goo attitude. Just share your concerns if noting comes of that do get a second opinion. Good luck! And I hope it's someting minor.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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