Thanks, family, for weighing in with your thoughts! I greatly appreciate it.

J got SLAMMED HARD by the Erbitux rash. His skin and scalp were an icky, nasty mess. His mouth was full of painful sores. It started before day 5 and the acne lasted for months after his infusions were stopped. He had the large dose--2 hour infusion--the first day. He ran a high fever and had a flu-like reaction with the nausea, etc. But, he seemed fine the next day. I think he'd throw up on the way home from work and a couple of other times.

The second infusion didn't cause such a bad reaction...but, then again, it was nearly half the amount of the first one. He was in the infusion chair when I was talking to City of Hope getting word about the misdiagnosis. I called him immediately after and told him, "Don't rip out your I.V. But...."




Last edited by Sandy177; 12-10-2011 12:57 AM.

Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.