Hi there - mushroom... Usually something like that is a blown up end to hold the tube in place. You should definitely have it changed more frequently (no tube should stay in for years! , and they should scope you smehow to take a look at it before hand - hence the endo or fluoroscope. They wouldn't yank something like that - they'd deflate it or close the end first which another reason for the scope. If you're nervous they'll relax you with something, or put you out. But you hold definitely have it changed! Good luck, and sorry you've been through the whole mess twice, therapy may help a little, physio, acupuncture, swallowing. Ask about extra therapy to see if you can try to regin some of your function back. Take care.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan