I saw my ENT yesterday to have my first laryngoscopy done (scope camera up the nose tubey thing)to take a look at my vocal cords.

I am pleased to report that he saw no evidence of tumor and my vocal cords, while still swollen, look healthy and relatively normal. He said the edges are straight again whereas before the left side was all wavy and the full contact surface did not meet the right side when phonating. So this means my voice should continue to get stronger as the swelling goes down and I may yet be able to sing again someday soon. That would mean so much to me. You have no idea.

But good news so far.

I have developed what I think is lymphedema. ENT saw the swelling and palpated, didn't seem concerned at all. But my experience matches the "turkey neck" experience I have read that many OC patients talk about online and it also decreases in size throughout the day from it's biggest point when I get up. So that would make sense if fluids are moving out from gravity, and it also started just a few days ago. I have read that it tends to start 6-8 weeks after treatment is over and that is right where I am. So I'm not really that concerned about it.

Anyway thought you would like to hear the news!! Anyone reading this should be encouraged. The determination to fight, and for me and most importantly, leaning on God, can carry you through anything.


Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]