Hi Jayne,

We hit the sh%t jackpot with a false positive PET. Not only did the doctors waste the opportunity to do a biopsy of the 4 nodes that lit on the PET when J had his diagnositic tonsillectomy and random biopsies, but staging and treatment were based on it.

To J and me, having those nodes biopsied would have prevented so much of what he went through and is still going through. So, if you need to, go for the biopsy and try not to worry.

Good luck, you beautiful survivor!


Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.