Trese, this will be my final post to you. I have sent you PMs with detailed info. I will repeat what I have already told you several times. Nobody on this forum can diagnose you over the internet. This forum is made up of members who are caregivers and patients. The ENT practice you have gone to is the top one in your area. They treat hundreds of oral cancer patients so they are VERY familiar with what IS oral cancer and what ISNT.

Ive noticed and discussed with you how your story has bits of info omited. There isnt a doctor that will ever be able to help you 100% if you only tell them 1/2 a story. When the ENT asked you to point out the spot you thought should be biopsied, you 'forgot' about this spot on your lip. If this was there when you went to the ENT, they would have seen it during the exam. Your first few posts dont even mention a spot on your lip.

I know you are worried. Its very scary to think you have cancer. Ive seen many people come to this forum who 'knew' they had oral cancer only to find out it was nothing serious. A white tongue is not a sign of oral cancer. You have already been treated twice for thrush. Is it possible that you didnt take the medication or follow the directions exactly? Sure, we are all human and can make mistakes. Its very possible that you did not respond to the medication and that it needed to be changed or taken for a longer amount of time.

I am very sorry you are going thru this. After going to so many professionals, when will you draw the line and trust what you are told? Sooner or later you have to accept the facts. Of course doctors can be wrong too but in this situation, I do not think you have been misdiagnosed. Of course this is my opinion and it is over the internet and on top of that I am NOT a medical professional. See where Im going with this? I would suggest if you still believe you have oral cancer to reach out one last time to an ENT. If they dont see a problem, point out what you think needs to be biopsied and take it from there. If the 10th doctor tells you nothing is wrong, then take it at that.

I have even given you my number to call me. That was over a week ago and still you have not called. I must put my attention on other issues on this forum. I need to help people who have oral cancer and are suffering from it and the horrible side effects. Be happy you do not fit into this category!!!! Oral cancer is a disease I wouldnt wish on my worst enemy.

I would like to suggest you turn your attention towards the positive things in your life and focus on that. When someone thinks too much about a problem a person's mind can play tricks on them and they concentrate only on the "what if's". This is not healthy or productive. Please help yourself and instead of 'knowing' you are sick, do something positive instead. Celebrate the fact that you do not have to suffer like an oral cancer patient does. Be glad that your body is not all pieced together and you have not had so many surgeries you have lost count. Be thankful in knowing you have you whole tongue and can eat anything you like anytime you like. Count your blessings in being able to not wake up in pain so bad that it takes you 10 minutes to get out of bed. Look in the mirror without cringing when seeing your reflection of the 'new normal' person you have become. Go out and enjoy the day without being stared at for looking different. Remember that you are very very fortunate not to have cancer and live your life to its fullest. You have 2 very big reasons to put this behind you and move on, your 3 year old twins.

Best wishes with everything!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile