Total agreement about finding competent medical help (why we always advocate finding a CCC or CC for treatment). Personally, I went to UCSFCCC for RT and had the leading researcher for IMRT and H&N cancer treatment. UCSF has conducted many clinical trials for zerostomia and other H&N related areas of concern.

As far as H&N fibrosis is concerned, as in other areas, because of our relatively small numbers, we are going to be piggybacked on to other treatment modalities (except for a very few brave researchers). We wouldn't have access to IMRT if it wasn't for prostate cancer.

So was the breast cancer article merely postulating a correlation between radiation induced fibrosis (in general) or did they actually (and specifically) examine that aspect?

In the grand scheme of things, my fibrosis is an annoyance, to be sure, but it sure beats the alternative...


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)