Thank you all for the warm welcome. I have lurked here for awhile, soaking up the stories and information. (Incidentally, I found this site by doing a search for oral cancer on the internet.)

I am fortunate to work with nurses and physicians that were willing to talk with me about my biopsy reports, surgery plans, anesthesia and pain control after I got the information the first time from the folks caring for me at KU Med. It is hard to retain all the information the first time around!

My husband got me a big spiral notebook, we call it the cancer book, to make notes in and it has pockets for reports, letters, insurance approval letters, EOBs, etc. It goes with me to all appointments and sits by the phone so I can access it easily if I am talking to the insurance company, doctors office, whomever.

I will contribute if I feel my experience might help someone, but I am the first to admit I don't have a lot of experience with this to share.

Take care everybody.