Hey Cheryl - MO and RO said it was radiation induced fibrosis of the spinal cord - very common to appear 3-6 months after the end of radiation and should last approx 6 months. Range of motion - essentially stretching the cord itself through neck flexion is supposed to help limit the stiffening of the spinal cord. It's kind of a freaky feeling but now that I know I'm not doing permanent damage to my spine with each movement the freaky feeling, at least, isn't scary anymore!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!