Im sorry Julieann but I have not run into anything similar on this forum. I wish I could help.

I find it odd that you never went thru the dry mouth phase like everyone else did about a month after finishing treatments. It was thick gagging mucous one day then dry mouth the next. The dry mouth hung around for a few months gradually getting a little better as time went by.

I really hope someone will be able to help you find and answer to your problems!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile