Thanks Charm- I remember a thread discussing night time administration a few months back. What really pisses me off is that I brought this up with the RO back in FEB and was told that levels are usually done 9-12 months after treatment. Well 12 months came and went, and nobody even mentioned TSH so I took it upon myself (as usual)to get it sorted. Thanks once again to OCF for alerting me. I am really over the RO who is only concerned with checking to see Alex's throat is clear of cancer and seems unconcerned with managing ANYTHING to do with side effects. He at least he had the good grace to admit that ROs do the destroying and others have the role of rebuilding. This is all very well, but he fails to elucidate WHO can help and WHAT issues to look out for. What non-medical person connects a side effect such as temperature intolerance with their radiation treatment unless they are told?

I detest that patients put their doctors on pedestals and step blindly into the abyss not even realising their path could be so much easier. And those doctors who refuse to think beyond their own discipline to solve the problems associated with treatment. What is the point of a team based approach if the team isn't consulted?

Sorry a bit of a rant here but I am SICK TO DEATH of following behind the doctors, fixing their oversights and questioning their thinking.


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight