"OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Thanks Cheryl this is great.
Anyone have more??
Alex is 12 months out with liquids still his only oral intake. Anything to strengthen his swallow would be appreciated. He complains about a sort of "ledge" where food just stops and sits, giving him the feeling of either choking or something stuck in his craw (which it literally is). He has had 2 barium swallows which also show some functional damage. RO commented on this last week as a risk to oral health with infections coming from the material that just sits there.
Sorry Jingle Bell for the hijack but this might be relevant to your husband once the tube comes out if it isn't out already.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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