I am dying to share my story of hospital food and Alex's cancer but unfortunately we are in Australia.

Luckily most oral cancer patients won't have experienced the joy of pureed food in hospital as most don't have to stay too long. Poor Alex, however, was stuck in hospital for an unscheduled 50 days and experienced the complete disconnect between delivery and removal of meals and someone taking responsibility to ensure he actually ate them. Alex was charted for a "soft" diet which seemed to have been code for "patient too far gone, no variety required". It seems the job of the catering staff (sorry don't know what they are called) was to drop the tray off and pick it up again with no responsibility to check if the patient had eaten anything or have any dialogue with the patient at all. The nurses certainly didn't check either so if the patient was unable to complain or had no appetite and kept their mouth shut(as Alex did) it would be completely overlooked. Alex lost 12 kilos (26.5 pounds) in hospital over a period of about 4-5 weeks because of this.

Variety? Yep, breakfast was custard an acidic drink like orange juice and a yoghurt. Lunch was custard an acidic drink like apple juice and a yoghurt. Dinner was completely out of the box with custard, a cup of tea and a yoghurt. If you had an appetite at the start, a few days of that ensured you didn't by the end!! But maybe I exagerate slightly - the yoghurt came in different flavours that Alex was unable to differentiate as well.


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight