Welcome, Sassy. What a rough time you are going through! I have absolutely no answers for you, but am sending a cyber hug because you surely need one! I would suggest that you read the information in this site. The more you know, the more you can tell your doctors what you want, and understand what they are telling you. I am sure some of the people here whose cancers involved the tongue will be able to give you some answers. Hang in there!
Joanna