Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | Ellen - so sorry to hear your hubby's feeling the effects. I don't know your husband at all but I do know that for me knowledge was power - of which I felt I had very little at the time. It meant a lot to me to know what was ahead of me and the timeline - I knew I had to make it through 6 weeks of treatment and then I knew I had to survive the 2 weeks after treatment. I waited everyday to feel better - I'm not sure how my psyche would have been affected if I actually felt worse every day when I expected to get better. I guess I'm suggesting that it might be better for him if he knows what to expect. Just my opinion based on my own experience.
Also - my mouth was so sore that I couldn't use the fluoride trays for a few weeks. The RO said not to worry about it - that the fluoride actually irritated the tissue and impaired healing - so the benefit to the teeth was not worth the irritation to the tissue for the brief period of time when the healing was priority. So ask the MD - might be ok to skip the fluoride for a short time - less pain and potentially faster healing!
Good luck - this is the worst of it - he WILL get better!!!!!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
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