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#1379 07-01-2003 01:11 PM | Joined: Jun 2003 Posts: 5 Member | Member Joined: Jun 2003 Posts: 5 | Hi Fr. Mike..glad you got some good news. I am 8 yrs in remission for SSC of the base of tongue with mets to the lymph nodes bilaterally.. and I went with chemo and radiation instead of surgery first. I think it depends on your dr.. what they will do. That is from observing the posts here. If you do chemo first.. they will attempt to shrink as much as the tumor as they can.. until it dosn't shrink anymore and then they will do radiation. If you do inpatient chemo.. I recommend that you ask them to give you something to sleep. Alot of people will try and come to visit and it will wear you out. If you sleep.. it makes it much easier for you! They have drugs to help with the nausea.. and I don't know if they talked to you about having a port a cath.. but I would recommend that first.. It will really help with this part of your journey. Let me know if you need me to explain that more.. Then for radiation, I also think a feeding tube is essential to anyone who had radiaton to their tongue. I am sure lots of people here can help you with that.. I refused to get one as I thought I wouldn't need it and I lost so much weight.. it took years to get it back. If I had a feeding tube, I would have been at least able to aleviate alot of problems.. even tho I know it sounds real scary. I am sure praying for you.. I too believe in the power of prayer. Try picking up Bernie Siegals book Love, Medicine and Miracles.. it is a really good book about the power of positive thinking. You will get thru this.. there are alot of people here who have been thru it and seems like there isn't anything they haven't faced.. and now are willing to share with others. YOU CAN DO THIS! Feel free to ask me anything.. no one knows why non smokers or non drinkers get this at an early age. Why isn't really as important as getting ready to do battle. You have to really use your mind now.. and stay as positive as you can. Do you have someone who can drive you to treatments and help you thru this? Beth | | |
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