Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | HBO is used for osteoradionecrosis. Sometimes a picc line with IV antibiotics are done along with the HBO. It makes me nervous seeing specialists who are not familiar with oral cancer patients. We are a different breed! There are many little things that must be paid attention to when treating one of us OC survivors.
If Michael doesnt want to do what is necessary then he wont get better. How about showing him these posts and what other OC patients have said about this? It cant hurt. He really needs to understand that none of us like going thru all this stuff but there isnt a choice. Either do what the doctors say or you dont get better. I really hope he will think it over and decide to comply with his doctors orders. If not and he has osteoradionecrosis, things will get very bad for him. It will cause intense pain and could lead to needing a mandibulectomy which is removal of his jaw. That is one surgery I wouldnt wish on my worst enemy! It took me about a year to recover from it. So Michael really needs to weigh all his options and make a decision. Hope he makes the right choice!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |