"OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | So Sherry, you should have had the mask fitting and simulation by now. How did you go? Not nearly as bad as you imagined I hope. Keep that memory because it will help with all the other uncharted waters you will sail. The fear of the unknown causes anxiety in itself and once you know how it goes that anxiety drops dramatically.
My Alex was irritable (his outward sign that he was scared) before any procedure we faced for the first time. Immediately after, he was positively buoyant and bounced around the place like he had won the lottery! Ok, maybe not quite that happy, but certainly it was clear a lot of his anxiety had disappeared.
When he got to radiation and got the hang of the procedure he found himself looking forward to it because he felt he was actively doing something to beat the cancer.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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