Hey Michelle - SO VERY GLAD TO HEAR YOU'RE DOING BETTER! (the caps are to express my enthusiasm!!!)
The tongue gunk sucks - I bought a few packs of baby washclothes and scrubbed at my tongue several times a day. My tongue is still white and coated every morning -I don't swallow as much at night and my mouth gets very dry since the swallowing acts to clean and moisten the mouth(reduced swallowing = reduced natural mouth cleaning)
My own personal thought is that the protein base in all the Ensures, Boosts, Carnations and protein smoothies did and still do leave some residue on the tongue that's tough to get off. One last thing - I would have thought my Sonicare tooth brush would be the bomb in tongue gunk removal (it is supposed to move at a thousand brushes per second - or something like that :-)- turns out a manual tooth brush and a washcloth are way more effective!

Keep me posted! I can't wait to hear about your ongoing recovery!

I'm going to try Charm's Kleenex trick but I'll be honest, I'm expecting some of that Kleenex to stick to my tongue resulting in an unflattering imitation of a cat with a hairball! I will try it though!

Take good care!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!