I am exactly 2 years ahead of you husband. One piece of advice is to keep that PEG a bit longer. I got rid of mine too soon and continued to loose weight and have malnutrition issues. Food wasn't a friend for quite awhile; infact, for more that a year post treatment I had to remind myself to eat. Eating and food are still not high on my priority list - but I do feel it is improving. It is almost a mental thing to just get to the point where you eat because you have to and you do not expect alot from it as far as taste goes. But with that said - when your husband does find something he likes - just let him eat all the time if he wants. To heck with variety. I ate Fish Spread made with dolphin (fish) almost exclusively for 3 months. As far as saliva goes - I can lick an envelope and actually spit. Tell him it gets better!


DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10