The last two times that his show did an oral cancer related story, they did not do a very good job with the facts. It was disappointing. He had a general dentist who didn't even know all the risk factors for the disease, on with him. I think a personal friend. This time we offered to do what we did for Good Morning America, find a patient, find an expert, write a good list of questions for them to ask, and gave them a backgrounder document that had everything they needed to know. They did a really good job telling the HPV/OC story, but they were more than willing to work with OCF to make it come together correctly. There was no mention of OCF and we didn't ask for one, we just wanted an opportunity to get the story out right. GMA did a great job.

The people at doctor Oz have done the exact opposite, they don't want us to help them or even fact check what they are going to say. We don't want to write the show for them, we just want them to get their facts right. Given the shows track record with the OC facts this is disappointing. OCF fact checks for the NY Times, the Wall St. Journal and others.

The only reason that the show came to us with the request is the HIPPA laws in the US make it impossible for them to find, through institutions or doctors, patients or survivors to be on the show. OCF contacts are the only means for them to find someone and not have a legal conflict of interest with patient privacy. So we're playing the role we've been asked to play, but disappointed and concerned that they apparently think they know what the whole story is�.. given their track record we need to cross our fingers. At least the disease is getting on the air, and that is a big positive. And anyone that has been on these boards is more informed than many dentists about the HPV and oral cancer issue, so I am confident that given the chance, the patient/survivor they choose will get it right.

Last edited by Brian Hill; 05-18-2011 08:59 PM. Reason: spelling

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.