Well I'm day 10 post treatment and yes - I have been frustrated - I knew things would get worse- and they did - mostly the mouth situation. My throat had been sore alll along but I would just power drink my ensure and then move on with it. Admittedly the pain did get worse and my casual use of the codeine didn't seem to help much - so they prescribed my oxy this past Monday - very low dose. And that has really helped. I just take one prior to eating chug then nap, because it puts me to sleep (Maine Will suggested the oxy on saturday a neighbor had some and because it was over the weekend i borrowed a few 5ml tabs and when they worked I dropped in to see my RO to get a scrip) the most disturbing and traumatic thing from all of this so far has been drooling - I know I said it before. But
it was so bad I couldn't talk, I would choke on it then cause myself to vomit - it was just all around horrible. Even last night I was feeling super frustrated about it. today my throat feels a lot better and the drooling is still there but a lot less bothersome.. yeah - so maybe that's one step out of the darkness for me. I also found that club soda helped a lot. I know the baking soda mixture is great therapeudically but you can only gargle with it - so this past week i decided to switch to flattened club soda and that really helped... Not only did it clear up some of the secretions, but just hydration too was good. I could drink warm water before all this but only in small amounts, and honestly - it was gross and sometimes painful. But even if the club soda was cool, it would go down with no pain, and be refreshing. so that's wheren i am at - my tongue is still swollen, but that appears to be getting better daily. I know i have a long road ahead of me but that's okay - my MO let me go sayng she hoped to never see me again- my senitments are the same, my RO is scheduled to see me in 5 weeks... (unless anything unusual pops up) and my SO is seeing me in July. I am also due to have my new scans done in 12 weeks. My RO said any sooner and we may end up with a false positive, so for now it's about trying to find my new normal... Whatever that may be. I just hope it involves a lot less drool... I do have to say I am totally craving cherry slushies... I sincerely hope I find my taste buds soon. - not a fan of ensure/ boost/ any of those things actually - I miss my fruit, fresh veggies, and drinks, and a whole bunch of other stuff. i am going to attempt to eat very small pieces of cantaloup today to see how that goes.. It's all about one small step at a time.
Well I just though in would up date my post tx info...