Well Rosie,

Guess it's the limbo thing!!! They did stop chemo since my body wasn't fighting the bad side effects anymore and the blood counts just weren't coming back up. The side effects were getting worse (fingers, toes and ears)and he was concerned since some are (or can be) permanent. In other words he said he wanted to quit so if I ever needed it again I could have it. I will stay on the investigational drug (FDA just approved the sister drug Irissa). I'm still the poster child for this drug. Total start tumor mass was 95.6 sq. cm. Last CT Scan was 7.2 sq cm. Pretty good stuff.

I am trying now to get an appointmnet with a surgeon that will do RFA (new radio frequency surgery)on me. They were too big for surgery before. They aren't big on it because the tumors come back, but if this drug works then they shouldn't come back..."that's my story and I'm sticking to it" I hate the thought of just leaving the tumors there, but will (obviuosly) if I have to.

Otherwise I'm just going through some radiation side effects that I could really do without...But as we say around our house: "Radiation; the gift that keeps on giving"

Thank you for thinking of me and do please continue to keep the updates coming, either by email or board.

Take care - kisses for Heather,
Dinah