Michelle Ann,
I felt really bad for 10 days post radiation/chemo (get me to the hospital bad at times). I felt less desperate for the next week, then a lot better. I am 5 weeks out now. I found everyone's "better" is different. My definition of "better" is far from perfect. I still have some pain, take little for it, I am uncomfortable with a lot with stiffness, collection of fluids in my neck, occasional troublesome mouth sores, and lots of muscle aches. I don't have the thick saliva issues you have, and that would be hard to take. I did have it with my surgeries I remember. The skin on my neck is not burned anymore, but itches at times, hurts at others, and looks dark and blotchy. I ignore lots of all of this, or just treat it--like putting cream on my neck, soda rinse in my mouth, and then ignore it if I can, because I want my life back, too. Most of it is not significant in terms of serious illness.

I get enough rest, drink a lot of water, eat the best diet I can, practice excellent dental hygiene, and try to keep a sense of humor. I talk to my friends locally. Oh, yes, I try to get exercise every day (not for the first 2 weeks though, except some of the swallowing and neck dissection exercises). That exercise has improved all the muscle aches I was having.

So that's me. We are all different. This is not putting anyone down who had more trouble. I know I am not going to be the same as I was. I know my recovery is far from complete, but I can function and can even have fun with friends and family. It might take you longer, but you will feel better.

Best,
Anne

Last edited by AnneO; 03-31-2011 08:28 AM.

SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021