Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Caregiver,
Has his slides been tested for HPV16?
The 2nd round of Cis was the beginning of my bout with long lasting nausea so try and help him stay of top of that.
You must get him to consume at least 2500 to 3000 calories EACH and EVERY DAY. He must also drink at least 48 ozs of water EACH and EVERY DAY. Look into Carnation Instant Breakfast VHC which has 560 cals in a small 8 oz can. This will really help as the swallowing gets more challenging. He must continue to use his swallowing muscles throughout this Tx no matter how painful it may seem at the time.
Did they do a pre Tx hearing test?
Check his last blood test to see if TSH levels were checked.
We will be here 24/7 to answer any and all of your questions. It may get very bad for him over the next 6 weeks or so but then it's onto recovery so remind yourself and him that there will be a light at the end of this tunnel.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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