Hi everyone,

I'm coming up on my 4 year mark. Had a clear scan in January. Started having PAIN big time that has been getting steadily worse over the past couple of weeks. I've been taking 800 mgs ibuprofen every four hours around the clock for said pain - even waking up with the pain and taking meds at 4:00. It HURTS!!!

I went to my surgeon today, they fit me in. He couldn't see anything obvious, prescribed neurontin and a medrol dose pack. He then said that if the pain didn't resolve with those meds, he'd put me under anesthesia to go looking for a possible recurrence. I have trismus, so I know it probably isn't easy to look at my mouth. After I left, I wondered what he meant by putting me under anesthesia to look. Has anyone else had that experience?! Is that just because he needs to have me out to manipulate my jaw to open wider? What does that mean?!

Lisa

Lisa
36 years old at diagnosis
SCC of the tongue T2N2bM0 Stage IV
post hemi glossectomy and neck dissection (3/28/07), finished 6 weeks of radiation and Cisplatin x2 6/19/07. Biopsy taken from right side of tongue 7/17/08 - results showed infected abscess and no return of SCC!