Ah, that would explain it - morning sickness! So that's why I puked my guts out so much when I was on Cisplatin (they even had to eliminate the third and final Tx ;-).

The anti-emetics are all fine and good but if you read the fine print, they are effective about 60% of the time. Some need to be rotated (like Zofran) to maintain effectiveness. As a last resort, if you can't keep anything down, there are always Compazine suppositories. Cisplatin does on number on the GI tract, in general, so a medical grade antacid should be part of your meds (like Famatodine, AKA Pepcid AC)

I have to question the previous post about "...oral fluids...", I am sure that fluids administered via PEG (or IV for that matter) count as well (water in food also counts).

It is absolutely vital to stay hydrated during treatment (especially if you have renal impairment). Not to fear - if you don't, you'll end up in the ER (like I did - twice). Tip - If you need to be rehydrated, by IV, go to the infusion clinic instead - it's much faster and comfortable. If you are vomiting you will lose a lot of fluid in a short time period and it must be replaced.

We all respond differently to Tx, some better than others - I was not one of them. You'll have fair days and horrific days. Cisplatin and radiation are not a treatment for wimps.

I wouldn't characterize it as not doing well as your experience is somewhat typical. You probably weren't properly prepared by your doctors.

About the mask - it will loosen up as you lose weight.

At least it killed the disease so it was ultimately worth it.

Keep your eye on the prize...

Last edited by Gary; 02-25-2011 08:27 AM.

Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)