Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I am on my 4th year soon and I only have a taste for the 1st food that enters my mouth. Then after it could be cardboard or mud. No taste and that damn burning of the mouth.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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