I just took this survey and its innocuous. No goofy questions nor false scary questions like "do you think you can get HPV from taking a shower? (seriously a real question from one survey I was asked to comment on ). Ignore the disclaimer about skipping questions or being upset because none of us who have gone through this as a patient or caregiver are going to find these questions overwhelming.
Seems to focus on the importance of medical records and communication with your medical team so I'd encourage OCF members to take the survey.
Of course, all of the above is just my opinion
charm