Hi all,

I had my 3 month appointment today and my doctor saw a spot towards the front of my tongue near the bottom that can no longer just be watched and will require yet another partial glossectomy (this will be my 5th) nothing is scheduled yet because she told me about a study being done at Penn that she wants me to look into.

So...the study is on PDT (photodynamic therapy) from what I understand there is a drug injected into the bloodstream and a couple days later the area is exposed to light. The cancer cells hold the drug while the good cells do not so when exposed to light the cancer cells die. My doctor told me this has been used on other types of cancers and has favorable results.

Has anobody heard of this or know anything about it?

Last edited by suzanne98; 02-11-2011 06:46 PM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)