Wow, that is a tough one. I don't know what it is like to deal with the tongue issue. Mine was the roof of my mouth. I didn't have one which made swallowing anything a little more difficult. They actually rebuilt mine so now things are easier to swallow but I have no desire to. And most things don't even smell good which doesn't help the desire part. I am not able to even try solid foods as I have to upper teeth and some things are not appetizing pureed. ;-) I have only tried a hand full of things in about two years as well. I have bad dry mouth and when I do try things I have to drink a lot of water to help get it all down. I think to some degree it is just going to take a while and as long as he is trying and drinking the shakes, that's pretty good. He has not given up. Keep your head up and this to shall pass.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10