 "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | Hi NonaChris,
Everyone reacts differently. My neck burn never got too bad. Sure, it was unsightly, but was minor compared to some other complications I had (like nausea and gag reflex so that I couldn't eat anything solid for a while - vanilla Ensure became my friend). My neck burn was probably the first side-effect to clear up once I was out of active treatment. Perhaps this was in part due to using the cream.
I used the Silver Sulfadizine, but my wife has an allergy to sulfa drugs so we had to be very careful with it.
Eat eat eat! I lost 20 lbs through my treatment, despite every effort to the contrary. I also lost my ability to taste for a while, which makes food very dull. My taste has returned, but my mouth is relatively dry still, which makes eating a chore, depending on what I'm eating.
Good luck!
-Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
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