Shit. I saw your other post too and was crushed to read it. Have you gone for a second opinion, preferably at a CCC? (unless of course you're already at one)

Let us know if there's anything we can do. There are people on this forum with tons of experience and knowledge and I'm sure someone in your situation will weigh in.

david2

David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18