Thanks for the info on the rinse. Today I start my radiation. Tomorrow I have my first chemo. It feels like everything that happened prior to today was dress rehearsal and now the performance begins. My feeding tube is causing me a little pain, but the kind of pain the doctor said I would get the first few days. The worse thing of all is feeling so debilitated. I have always done so much and felt so robust. Now I feel like my life is shrinking. I know it's temporary, but I still feel feeble and weak and small. My partner and kids are great and we have so many friends and family who have helped us so much already, and I am grateful, but man nothing is worse than feeling so limited in what I can do. But there is a time for everything, right? Ecclisiastes says so; this must be my time to be sick. -Michelle


SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.