Yep!

I had a tunnel that ran along my top cheekbone with an open hole under my ear.. This was from having a major surgery which removed my lower jaw. Then the free flap failed and had to be redone. So somewhere between the 2 surgeries, the tunnel developed. It took almost a year for the tiny hole that was the start of this tunnel to heal. I went thru the picc line with IV antibiotics along with a visiting nurse for about 9 months. Mine was infected too, for a few months. Ive had a wound vac attached to the wound below my ear for about 2 months. I even did 40 hyperbaric oxygen treatments (HBO) to help heal the wound. After radiation these things happen and they are very stubborn to heal. Its now a year and a half post surgery and I am still struggling to completely heal this tunnel. Wounds must heal from the inside out. I also take some high protein powder daily to boost my protein intake. This also helps promote healing.

It may be a good idea to check with your doc about doing HBO. That is done for healing problems like this. The picc line is no big deal, I had mine for what seems like forever. The IV meds can be a bit of a pain taking them 3 times daily. But you must do this in order to be healthy. My infectious disease doc was one of my favorite doctors. She was smart, helpful and kind.

Get some Glad Press and Seal to use to wrap your picc line site arm so you can take showers. If the picc line ever gets clogged and you cant take your meds, call the doc who can put some special saline rinse in it to clear the line.

Sorry you are going thru this. I know its a real pain to deal with this. Best of luck with everything.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile