OP Supporting Member (50+ posts) Joined: Dec 2010 Posts: 99 | Hi The antibots were Nystatin to swish and spit and Diflucan once a day he crushed into his PEG for Thrush and Augmentin for the infection of fluid. Emmett has no feeling in the front area of his mouth due to the jaw surgery, on the right side and on his flap side of tongue. He does not complain of pain but he has had a little burning in the tip of his orig tongue and where the white area is he says it feels like his tongue was burnt. These areas did not appear until three weeks after TX. I called Mayo this morning because there has been no improvement since starting the steroids or the anitbotics and it has spread larger and in more areas since we first noticed the problem 2 1/2 weeks ago. I asked about getting a biopsy. Our Ongologist who called wants to talk with ENT surgeon so we are waiting for a call back. We have really been happy with our Mayo team even after we have come home. Will post with what they recommend.
CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
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